January 13,2010 to January 14,2010

I have anticipated writing this post for the last 22 weeks, and I am still not quite sure how I want to do this. This has been a journey for our family. Interestingly several months ago we put the saying "Finding joy in the journey" up on our wall. I think that I will share the short story, as my journal has been a close companion of mine, and contains all the details. About 12 weeks ago, we learned that our second child, also our first son, was diagnosed with something called Trisomy 13.
We had never heard of Trisomy 13, and when we first heard about it we thought, that is okay we will do whatever it takes to fix "it". To our shock, there was more to learn about this chromosomal condition. The doctors tried to tell us that Trisomy 13 is not "compatible with life". Our thoughts? That's okay, we'll fix it, we'll do whatever it takes! We learned that Trisomy 13 is so severe that most likely every system in his little body would be affected including his brain and heart. The specialist had seen potentially serious problems with the left ventricle of the heart and with the cerebellum in the brain. Still, we maintained hope in our hearts and in our prayers that we may be blessed with a miracle.
What we didn't realize initially was that we were lucky that we were well into the 3rd trimester, and any amount of time that we were given to spend with Gunner was truly a gift from our Father in Heaven.

We went to the hospital early in the morning on January 13th and because he was in the breach position, we tried to turn him, without success. So, we decided to continue with a c-section. I truly cannot express the true happiness when I heard the first cry from Gunners mouth. Everyone else in the room was commenting on his red curly hair. Which, can I mention has been something that Eric and I have joked about having a boy with red curly hair for years. He was just perfect with his full head of red curly hair!
The next 35 hours were truly the most amazing, terrifying and wonderful hours. We showed Gunner the most love that we could in the time that we were given. We didn't sleep or rest, all we could find the energy to do, was hold him, kiss him and try to soak up every little detail that I will try to remember for the rest of my life. If you look at him, he was given some minor imperfections, which served as a reminder of his perfect spirit.
We believe that we did receive a miracle. Actually we received too many miracles to count. The amazing thing is how much we have grown as individuals as well as a family. The journey has been long and hard, but also a great source of growth. I love my husband more today than I ever thought possible. I am so grateful for Hope. From the very beginning, we knew that facing this without her would seem impossible.

About 2 weeks into this journey, I was praying and when I was finished, I knew 2 things for absolutely certain. One, my Father in Heaven loves me in just the same way that I love my children. That He is not punishing me, but that He is actually blessing me, and at some point in the eternities, I will come to understand that blessing. Two, that all He is asking of me is to turn my will over to Him. As I was able to try and do this, he took the pain away and replaced it with an overwhelming gratitude for the blessings in my life.

Words cannot express our gratitude to our families and friends that have been there to support us. Our families and friends are one of the miracles that we have been given, thank you!
I am so grateful for this journey, although the journey is not yet over. I am grateful to know that families are forever. Here are a few of the pictures that we have of Gunner. All the tears you see are tears of joy. To see more pictures of Gunner, press the play button on the picture below to see more pictures.
Also, thanks to Jeff Weber for taking the professional pictures. They are truly priceless!




